This appointment is for someone who has been seeking diagnosis or feels that hEDS explains a lifetime of health issues. This appointment contains all of the elements of an Initial New Patient Visit plus Detailed Lab Interpretation.
For this appointment you must be in WA or NV (soon OR as well). It is acceptable to fly into WA state for this appointment and obtain a plan for your local providers to utilize to improve your health.
You will have lengthy, detailed written plan! Any labs that have not been done in the past will be ordered. The multifaceted plan will give you forward motion on your concerns.
If you have been seeking a Hypermobile EDS diagnosis you likely are frustrated. Specialists and PCPS do not want to diagnose hEDS. Rheumatology will diagnose hEDS, however for the vast majority getting an appointment with rheumatology is impossible because of normal autoimmune testing. Genetics denies referrals for testing for any person who is hypermobile as there is no current test to confirm any form of hEDS.
Diagnosis is validating. It formalizes that it is not “in your head.” All the odd health problems you have battled for countless years seem to have a source. For too long you were told that it was stress, mood or weight related but this never felt right. The research you have done keeps leading you to hEDS. You can be treated as if you have hEDS without a diagnosis, but for most this feels insufficient and belittling.
If you want a diagnosis but no one will diagnose you, this appointment is for you. However, we go beyond the hEDS diagnosis. We will explore if you also have POTS, MCAS, or an autoimmune disorder. If needed we will order genetic testing to rule out other forms of EDS.
We do all of this in one day. This day is about you. Your bendy body, excessive fatigue, weird symptoms, and out of context reactions to injuries or life might be hEDS. Allow us to validate you, decrease the gaslighting, and give you a multifaceted plan for improvement. You deserve all of this!
This visit can be in-person or virtual. We acknowledge how much neurodiversity there is with hEDS and in-person visits can be draining or triggering. The appointment defaults to virtual as we have more availability. In-person visits are always on weekends.
There are payment plans or pay in full options. If you want to know more about what to expect please use this link:https://www.theedsclinic.com/diagnose-day